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Rare Disease Day NYC - Honoring Patients and Families

New York, NY, USA

February 28, 2019

Our 90-minute planned agenda for this patient-centered educational event is expected to include:

  • A focus on and celebration of the growing NYC biotech industry, including its contribution to advancing the science and promoting therapeutic development in the rare disease space. If you are supportive and willing, we can arrange a call to discuss planning details with our team organizing the event.
  • Overview of the purpose of Rare Disease Day and a brief background on rare diseases.
  • Speakers representing patients/families affected by different rare diseases to share their personal journeys living with a rare disease

The program, being held at the Alexandria Center for Life Science, will be immediately followed by a networking reception.