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World Orphan Drug Congress

Barcelona, Spain

November 12–14, 2019

Top speakers:

Andrzej Rys, Director, Health Systems, Medical Products and Innovation, DG SANTE

European Commission

Kristina Larsson, Head of Orphan Drugs, EMA

Bernard J. Grimm, Director, Healthcare Biotechnology, Europabio

Delphine Roulland, Senior Manager Public Affairs, EUCOPE

Ulrika Vestin, Swedish Association of Local Authorities and Regions (SKL),

Prof Maurizio Scarpa, Coordinator, European Reference Network for Hereditary Metabolic Diseases (MetabERN)

Anne Pariser, MD, Director, Office of Rare Diseases Research, National Center for Advancing Translational Sciences (NCATS), National Institutes of Health

Dr Vinciane Pirard, Co-Chair of Rare Disease & OMP Joint Task Force EFPIA-Europabio & Senior Director Public Affairs, Sanofi

Mark Rothera, Chief Executive Officer, Orchard Therapeutics

Stuart Peltz, Chief Executive Officer, PTC Therapeutics

Bob Smith, Senior Vice President, Global Gene Therapy Business, Pfizer

Sander van Deventer, Chief Scientific Officer, UniQure

Frederic Chereau, Chief Executive Officer, LogicBio Therapeutics

Marcus Guardian, Chief Operating Officer, EUnetHTA