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Founded in 2009, the EveryLife Foundation for Rare Diseases is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. The Foundation works with patient organizations, industry, academic scientists, the Food and Drug Administration (FDA) and National Institutes of Health (NIH) to improve the clinical development process through our public policy and patient advocacy programs. Additionally, we directly support the rare disease community through our outreach initiatives.

The EveryLife Foundation’s legislative and policy successes have driven our mission forward and enabled us to be a change agent for the drug development system, by promoting understanding of regulatory challenges, identifying barriers, facilitating potential solutions and building capacity within patient organizations.

Contact Everylife Foundation
Julia Jenkins, Executive Director 415-254-5758
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