ARM Member Profiles

Friedreich’s Ataxia (FA) is the most common inherited ataxia affecting one in 50,000 people causing a debilitating loss of mobility and life-shortening cardiac conditions. The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia. FARA’s Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.

FARA

• Funds and facilitates FA research
• Mobilizes and shares drug development resources
• Recruits with the FA Global Patient Registry
• Supports the Collaborative Clinical Research Network
• Builds public-private partnerships
• Organizes scientific conferences
• Leads advocacy and patient engagement
• Advances a robust treatment pipeline